UPDATED: 5/25/09 Please Help! I'm a mother of a disabled child who needs alot of things, including
I am a mother of a 14 year old boy who has cerebral palsy. He is totally dependant on others for his care. I am writing u this letter because I dont know where else to turn or what to do. I married my husband when my son was about 18 months old, his real father has never been a part of his life. Well now after all these years, we are wanting to seperate and i dont know if i can continue taking care of my son on my own.My husband has been a big support with bobby, he's always treated him like his son and has always helped me as much as he could as far as bathing him, sometimes he would take him to the bus stop for me if i was feeling bad. It scares me that one day im not going to be able to continue. I dont know what i would do if i werent able to care for him, but for now i try to give him everything he needs and be the best mother i can. I'm just in situation now, i dont know where to turn. The only help ive been able to get with him are Easter Seals, they provide diapers and his medicaid provided his wheerlchair. I dont have any at home equipment he needs or even a wheelchair or any vehicle that would be big enough to transport his wheelchair. At christmas time I want so much to be able to buy toys my son can play with or needs, but i cant afford any of it.Ive seen the prices on alot of the special needs toys for disabled children and its very expensive. My son is gettin very big and right now im having to wheel him to the end of the driveway, for school everyday. My driveway is 4 acres and isnt paved, it washes out alot due to poor drainage out here, the city wont even help. But i cant take him to school but i have no way to transport his wheelchair. If my husband and I separate, im worried i wont be able to care for my son on my own, im affraid i wont be able to continue lifting him, bathing him and even take him to his dr's appointments. I dont know where to turn or what to do for help. I love my son very much, he is my life. I want to give him everything but i cant on my own. I'm 35 years old, the older he and i get, it seems its getting harder to care for him. Please help or tell me where to turn. I'm starting to feel so alone in this.
UPDATE:5/25/09 I'm now divorced with 2 kids. One is 14 and my son is 17. He has cerebral palsy. They say he is the equivalent to a 9 month old. It is now 3 years later since my last post and still no help. I now have a van but still no wheelchair lift for it. Also, my son isnt getting any smaller, I'm looking for some sort of lift for the house to give him baths or help me with lifting him. He needs all sorts of equipment but there's no where to turn or anything, please help! Thanks
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